Autism Grandparents Club
The Autism Grandparents Club provides members with an evolving resource of relevant information and the opportunity for peer to peer conversation concerning family members who are on the autism spectrum. Scroll down to learn more!
Autism Grandparents Club.com
The 2021 National Autism Grandparents Survey Executive Summary
Are autism grandparents knowledgeable about autism? Are they involved with their grandchildren? Do they participate in decisions regarding therapy? Do they provide helpful resources? Are their relationships with their grandchildren’s parents good?
This Survey was conducted to answer those questions and more. One goal was to determine whether it is beneficial for autism professionals and organizations to proactively engage grandparents.
WEEKLY UPDATES & EXPERTISE
to the Autism Grandparents Club! I’m an autism grandparent and an ongoing learner. If you are an autism grandparent or family member, I hope you’ll join our Club!”
– Carol Vincent, Coordinator
ABOUT THE AUTISM GRANDPARENTS CLUB
The Autism Grandparents Club provides members with an evolving resource of relevant information and the opportunity for peer to peer conversation concerning family members who are on the autism spectrum.
We regularly feature fresh blog content of specific value to autism grandparents, such as: guidance from experts, links to recommended websites, suggested readings, and real-life lessons and learnings.
The Autism Grandparents Club also provides an around-the-clock online forum that enables members to post and respond to questions and comments – all for the purpose of helping autism grandparents with their unique roles and challenges.
And finally, the Club offers the ongoing ability for members to submit confidential questions and comments to our experts.
MEET OUR NEWEST EXPERT
Carol Vincent is the grandmother of two boys on the autism spectrum, brothers Isaac and Cormac, ages 9 and 5 respectively. Since their diagnoses in 2015 and 2017, she has been dedicated to expanding her knowledge and understanding of autism spectrum disorders and neurodiversity. She prides herself on playing a very active role in the boys’ lives and is committed to helping in any way she can.
Early on, she recognized that being an autism grandparent brought with it very specific challenges and concerns, and in 2018 created a Facebook support group specifically for grandparents (Grandparents of Children on the Autism Spectrum). To date, there are over 400 members from all over the world.
A recently retired RN, Carol is focused on increasing her presence in the autism community while also working on a book for autism grandparents. She holds degrees from Westfield State University, Anna Maria College, and the University of Massachusetts Lowell.
A MESSAGE FROM OUR COORDINATOR
Until my grandsons, Isaac and Cormac, were diagnosed with autism in 2015 and 2017 respectively, I knew nothing about it. As many of you also know, the amount of information on the internet has been overwhelming. I followed the recommendation of an ABA therapist who suggested a few books, and while the information was extremely valuable, I needed more. There wasn’t anything that I could find that addresses the specific challenges and emotional aspects of being an autism grandparent. In 2018, I started a Facebook support group specifically for grandparents, Grandparents of Children on the Autism Spectrum. I became aware of the Autism Grandparents Club several months ago and joined immediately. Effective October 1, 2021, I assumed the role of coordinator for AGC. I am very excited about my new role and look forward to what WE can do to support each other and improve the quality of life for out special kiddos.